Hadleigh Banks
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MEET HADLEIGH:
Baby H was born June 30, 2016 and loves books, cats, toys, her mommy, daddy, & big brother. She loves to crawl and explore. Hadleigh loves music, especially Adele. She is happy most of the time, although she is chronically itchy and in pain; this girl has a cup that is half full! THE UNFORTUNATE TRUTH: Pediatric Mastocytosis is a rare and debilitating disease, and is only found in 1 in 200,000 children world-wide. There is little to NO funding for research and currently NO CURE. It is characterized by the presence of too many mast cells in the skin which are produced by the bone marrow. Masto affects the amount of histamine that is released into the body, which most of us do to protect ourselves. |
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Masto kids, unfortunately, release too many and this affects the skin and may eventually affect the organs. It causes lesions on the skin that are extremely itchy and easily irritated. They cause hives, flushing episodes, and anaphylaxis. It can possibly present in other places, including the liver, heart, lungs, and gastric organs when systemic (Which is what the doctors believe Baby H has). Treatment ranges from steroids and antihistamines, to chemotherapy and depends on the type and severity. Baby H’s bone marrow IS involved so it is classified as an autoimmune disorder. This disease also needs to be closely monitored as it can become cancerous.
WHY HELP IS NEEDED?
Mom and dad are constantly on high alert, watching for signs of anaphylactic shock, irritable moods from chronic hives/itching and joint pain, lack of sleep, flushing, heat sensitivity, slow weight gain, and gastric issues. She will require: daily medication, monthly treatment by a team of doctors, including oncology and immunology.
HOW YOU CAN HELP
1. Please pray for Hadleigh & the Banks family.
2. Share this story on Social Media with a message.
3. Donate what you can to this GoFundMe page.
GRATITUDE
The Banks family has gone down to one income due to the medical obligations of Masto and are having a difficult time paying the hospital bills that are coming, not to mention the normal expenses of being a family of 4. They have to pay thousands of dollars BEFORE lifesaving testing can be performed. Please help me in supporting the Banks Family today! Thank you and God Bless! #prayforbabyH
Mom and dad are constantly on high alert, watching for signs of anaphylactic shock, irritable moods from chronic hives/itching and joint pain, lack of sleep, flushing, heat sensitivity, slow weight gain, and gastric issues. She will require: daily medication, monthly treatment by a team of doctors, including oncology and immunology.
HOW YOU CAN HELP
1. Please pray for Hadleigh & the Banks family.
2. Share this story on Social Media with a message.
3. Donate what you can to this GoFundMe page.
GRATITUDE
The Banks family has gone down to one income due to the medical obligations of Masto and are having a difficult time paying the hospital bills that are coming, not to mention the normal expenses of being a family of 4. They have to pay thousands of dollars BEFORE lifesaving testing can be performed. Please help me in supporting the Banks Family today! Thank you and God Bless! #prayforbabyH
