Hope 4 Hadleigh
Help with Pediatric Mastocytosis
Help find a cure!
Hadleigh Maeve Banks or Haddie as we all call her is 3 years old. Haddie was originally given a prognosis of a 2-13 year life span.
Haddie is covered head to toe in thousands of lesions that are very uncomfortable and look like a rash, but don't worry only her smile is contagious! These lesions on her skin are extremely itchy and easily irritated even just by touching her. They can cause hives, flushing episodes, and anaphylaxis just by doing normal day to day activities such as going outside to play, having a bath or even just crying or sweating. She unfortunately has to spend most of her days inside and at home to avoid reactions and germs. Haddie cannot be vaccinated, so Mom and Dad, Mandie and Josh do their best to keep her safe and protected and have affectionately named their new lifestyle "Island Living".
Since she was diagnosed she has endured two bone marrow biopsies, hundreds of blood draws, various testing, hospital stays and ambulance rides. After her second bone marrow biopsy at 16 months old she was diagnosed with Systemic Mastocytosis which means mast cells have invaded her bone marrow and other organs.